Simon Peters

Hello, I don't know if you saw the new logo on the home page here, but it's for The Global Genes Project.  This is a campaign presented by the Children's Rare Disease Network.   It is very very hard to fundraise for an organization that have small numbers of people affected (such as PKS Kids and dozens of others) so the CRDN was created to band together all these organizations under one fundraising umbrella/campaign.  It is a world-wide organization and The Global Genes Project is a massive effort to raise awareness and funds for rare disease organizations.

CRDN has designated February 28th of every year as World Rare Disease Day and this year has created the GGP (Global Genes Project) which will run the month of February.

I have a few favors to ask on behalf of PKS Kids:

First, are there any good sew-ers out there who could make some of these for me if I bought the materials?   http://www.crdnetwork.org/blog/how-to-a-jean-ribbon-for-global-rare-disease-day/comment-page-1/#comment-59

Second, would you please consider participating for PKS Kids in the GGP by organizing an event at your school or work?  (More resources will be added online shortly)

I plan on contacting some local businesses to see if they'll participate in the $1 Makes A Difference campaign.  If you are a business owner and will participate, please let me know and I'll get the materials to you!!

Third, would you please wear jeans on February 28th to show your support for PKS Kids??

Lastly, I ask please, for you to pass this on to ALL YOUR FRIENDS AND FAMILY!  This is a world wide event and we'd appreciate your support!

Any questions, or want to participate please contact me!

Thank you so much,

Gretchen