Posted by simonpeters
at 06:35 PM on April 23, 2009
Simon has had a fantastic couple of weeks. We started using his c-pap again about 3 weeks ago and it has made such a difference in his waking and alertness. He is practically awake all by himself at 6:30 when I go in to get him. Then he is alert and doing good through breakfast and the rest of the day.
At school, he has been working extra hard--spending up to 1 hour (divided) in standers (2 different kinds), prone/tummy-time, all-fours. He's starting to drink better from a cut-out cup. He's been happy and smiley. We had his IEP Wednesday and they all love him; he's still almost the youngest one in the school.
He is just the picture of joy. Smiles and contentment and love.
Isn't he adorable??
We went to the audiologist and the ENT today. Ranjani (audiology and one of our favorite specialists) tested his hearing aided. He came in at about 25-30 db which is excellent. His responses to the sounds are getting better and more pronounced.
The ENT was very routine...they just wanted to check the tubes in his ears. They are still doing very well and it's coming up on 3 years in June. She said we had 2 options. One to pull them and patch the eardrum, but pulling them prematurely could cause later problems, or Two, leave them in and hope a permanent hole doesn't ensue. She thought in the left ear there was a very slight chance it could be trying to come out. We'll just wait and see and go back in 6 months.
I'm SO glad the weather is shaping up. I love to sleep with the windows open and I love to hear the peepers and the birds. Drives Jim crazy.
Have a great weekend.
Gretchen
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Please help me remember that Your love is always greater than my disappointments and Your plans for my life are always better than my dreams.
Amen.
WHAT TO GIVE UP . . .
Give up complaining. . . . . . . .focus on gratitude. Give up pessimism. . . . . . . . . become an optimist. Give up harsh judgments . . .think kindly thoughts. Give up worry. . . . . . . . . . . . . trust Divine Providence. Give up discouragement. . . . .be full of hope. Give up bitterness. . . . . . . . . . turn to forgiveness. Give up hatred. . . . . . . . . . . . . return good for evil. Give up negativism . . . . . . . . .be positive. Give up anger. . . . . . . . . . . . . .be more patient. Give up pettiness. . . . . . . . . . .become mature. Give up gloom. . . . . . . . . . . . . .enjoy the beauty that is all around you. Give up jealousy. . . . . . . . . . . .pray for trust. Give up gossiping. . . . . . . . . . .control your tongue. Give up sin. . . . . . . . . . . . . . . . turn to virtue. Give up giving up. . . . . . . . . . . hang in there!