"And we know that in all things God works for the good of those who love him, who have been called according to his purpose." (Romans 8:28)
They are important to me, to other PKS families, and to families of other children with chromosome disorders. SPREAD the word about these sites, foundations and organizations!
http://benandbenniewaddell.blogspot.com/index.html This is a wonderful blog done by a father of a son with PKS. He is also an artist and he and his son do art together to sell. You will be amazed!!
www.jakezane.com Another wonderful little boy who happens to have PKS.
http://www.4pawsforability.org/ This is an organization who provides service dogs to autistic and developmentally delayed children. Our nephew Connor has a dog from here!
www.benotafraid.net This is an outreach site for parents who have had a poor prenatal diagnosis. The owner of the site saw Simon's website and asked for his story. Hopefully it will help many others!
www.pk-syndrome.org The first PKS website that helped many people find they weren't alone
www.rarechromo.org This is the foundation UNIQUE which has an amazing database of families all around the world affected by rare chromosome disorders