Simon Peters' website

Weight:  29 1/2 lbs
Length:  38 in

Simon is affected by:

~~mild obstructive sleep apnea
~~impaired hearing mild-moderate mixed hearing loss
~~visually impaired (Cortical Vision Impairment)
~~Nystagmus
~~Strabismus  (repaired via surgery August 2006)
~~moderate to severe hypotonia
~~mental retardation
~~developmental delays  (Currently at about 5 month developmental age)
~~high arched palate
~~severe underbite
~~Seizures--Myoclonic jerks, Atonic seizures, and Tonic-Clonic seizures
~~sparse hair pattern typical of PKS children (almost all filled in)

Medications:
~~ Topamax for seizures
~~ Lamictal for seizures
~~ Keppra for seizures
~~ Lactulose for constipation
~~ I give him Omega 3 Fish Oil also

Surgeries:

Cleft lip repair February 2005 Dr. Stephen Kasten
Ear tubes July 2006 Dr. Marci Lesperance
Strabismus surgery August 2006 Dr. Maya Eibschitz


Equipment:
Leckey Bath Seat
Kid Kart Xpress
Britax Traveller Plus Car Seat
Sleep Safe Plus bed
AFO's

2 items soon to come!

Doctors:
Family Doctor - David Lambrix Marshall
Neurology - Timothy Hoban U of M/Ann Arbor
Cardiology - Stephanie Wechsler U of M/Ann Arbor
Craniofacial - Stephen Kasten U of M/Ann Arbor
Opthamology - Maya Eibschitz U of M/Ann Arbor
ENT - Marci Lesperance U of M/Ann Arbor
Audiology - Ranjani Krishnan U of M/Ann Arbor
Developmentals Peds - Barbara Felt U of M/Ann Arbor
Genetics - No One!  
Orthopedics - Kelly VanderHaave  U of M/Ann Arbor
University of Michigan Hospital

I am God's project, and God never fails

Weight:  27 lbs
Length:  34 in
Head:    18.7"

Simon is affected by:

~~mild obstructive sleep apnea
~~impaired hearing mild-moderate mixed hearing loss
~~visually impaired (Cortical Vision Impairment???)
~~Nystagmus
~~Strabismus  (repaired via surgery August 2006)
~~moderate to severe hypotonia
~~mental retardation
~~developmental delays
~~high arched palate
~~severe underbite
~~possible tactile senstivity, although mostly in the hands (just starting to grasp and hold things)
~~Seizures--Myoclonic jerks, Atonic seizures, and undiagnosed episodes of a seizure variety
~~sparse hair pattern typical of PKS children (Getting there, but still not filled in)

Medications:
~~ Topamax for seizures
~~ Lamictal for seizures
~~ Lactulose for constipation
~~ I give him ground flax seed also

Surgeries:

Cleft lip repair February 2005 Dr. Stephen Kasten
Ear tubes July 2006 Dr. Marci Lesperance
Strabismus surgery August 2006 Dr. Maya Eibschitz


Equipment:

Maclaren 2006 Burnt Orange Techno Classic Stroller
Stander (not sure of kind)
Leckey Bath Seat
Kid Kart Xpress

Doctors:
Family Doctor - David Lambrix Marshall
Neurology - Timothy Hoban U of M/Ann Arbor
Cardiology - Stephanie Wechsler U of M/Ann Arbor
Craniofacial - Stephen Kasten U of M/Ann Arbor
Opthamology - Maya Eibschitz U of M/Ann Arbor
ENT - Marci Lesperance U of M/Ann Arbor
Audiology - Ranjani Krishnan U of M/Ann Arbor
Developmentals Peds - Barbara Felt U of M/Ann Arbor
Genetics - No One!  I guess Dr. Gorski moved 
University of Michigan Hospital

Thought I should update this to bring it up-to-date.

Weight:  24 lbs
Length:  32 in
Head:    ??

Simon is affected by:

~~mild obstructive sleep apnea
~~impaired hearing mild-moderate mixed hearing loss
~~visually impaired (Cortical Vision Impairment???)
~~Nystagmus
~~Strabismus  (repaired via surgery August 2006)
~~moderate to severe hypotonia
~~mental retardation
~~developmental delays
~~high arched palate
~~severe underbite
~~possible tactile senstivity, although mostly in the hands (just starting to grasp and hold things)
~~Seizures--Myoclonic jerks
~~sparse hair pattern typical of PKS children (Getting there, but still not filled in)

Medications:
~~ Topamax for seizures
~~ Lamictal for seizures
~~ Lactulose for constipation

Surgeries:

Cleft lip repair February 2005 Dr. Stephen Kasten
Ear tubes July 2006 Dr. Marci Lesperance
Strabismus surgery August 2006 Dr. Maya Eibschitz


Equipment:

Maclaren 2006 Burnt Orange Techno Classic Stroller
Stander (not sure of kind)
Leckey Bath Seat
Kid Kart Xpress

Doctors:
Family Doctor - David Lambrix Marshall
Neurology - Timothy Hoban U of M/Ann Arbor
Cardiology - Stephanie Wechsler U of M/Ann Arbor
Craniofacial - Stephen Kasten U of M/Ann Arbor
Opthamology - Maya Eibschitz U of M/Ann Arbor
ENT - Marci Lesperance U of M/Ann Arbor
Audiology - Ranjani Krishnan U of M/Ann Arbor
Developmentals Peds - Barbara Felt U of M/Ann Arbor
Genetics - No One!  I guess Dr. Gorski moved 
University of Michigan Hospital

as of May 26, 2006... 

Weight:  21 1/4 lbs
Length:  29 3/4 in
Head:    18 in

Simon is affected by:

~~impaired hearing moderate mixed hearing loss
~~visually impaired (Cortical Vision Impairment)
~~Nystagmus
~~Strabismus
~~moderate to severe hypotonia
~~mental retardation
~~developmental delays
~~high arched palate
~~severe underbite
~~possible tactile senstivity, although mostly in the hands (no grasping, holding things, putting hands down)
~~Seizures--Myoclonic jerks
~~sparse hair pattern typical of PKS children

Medications:
~~ Topamax for seizures
~~ Lactulose for constipation

Equipment:

Leckey Bath Seat
Tumble Form Feeder System
Kid Kart Xpress

Doctors:
Family Doctor - David Lambrix Marshall
Neurology - Faye Silverstein U of M/Ann Arbor
Cardiology - Stephanie Wechsler U of M/Ann Arbor
Craniofacial - Stephen Kasten U of M/Ann Arbor
Opthamology - Maya Eibschitz U of M/Ann Arbor
ENT - Marci Lesperance U of M/Ann Arbor
Audiology - Ranjani Krishnan U of M/Ann Arbor
Developmentals Peds - Barbara Felt U of M/Ann Arbor
Genetics - Jerome Gorski U of M/Ann Arbor
University of Michigan Hospital